Parkinson's Network Providing Support Services in Leicestershire & Rutland
This website has been created for and by people living with Parkinson's in Leicestershire and Rutland. The local groups which form the hub of the network are all run by volunteers and supported by Parkinson's UK staff.
We aim to provide signposts for those people living with Parkinson's, their family, and friends to activities across both counties as well as information and new initiatives on Parkinson's.
The network provides alongside this website a quarterly Newsletter.
UPDATE FROM THE MOVERS AND SHAKERS
Dear Ronald,
I hope this email finds you well. We just wanted to update you on what we've been doing since handing the petition in. While we didn't manage to meet the Prime Minister before he called an election on 4 July we have had some fruitful meetings with other politicians to discuss the charter.
Our meeting with Health Secretary, Victoria Atkins in April was largely positive, although she wasn't aware of the low number of specialist nurses or neurologists. We were pleased she told her civil servants to look into the shortage of Parkinson's nurses and explore the government's investment into Parkinson's research.
We also met with the Shadow Disabled People's Minister Vicky Foxcroft, who while she had to leave so she could vote, took away the important message that a new government must ensure the Department for Work and Pensions is more compassionate and treats people with Parkinson's with respect and fairness.
Our final meeting before the election was announced was with the Shadow Science Minister Chi Onwurah. She didn't need persuading about the potential to develop home grown medical technology, and was keen to hear our arguments for greater investment in Parkinson's research.
So a promising start, which you can read about in detail. We plan to follow up when the new government takes office!
Until then, register to vote (deadline is tomorrow, 18 June), take your ID to the polling station on 4 July and thanks from all the Movers and Shakers and the team at Parkinson's UK, Cure Parkinsons and Spotlight YOPD.
Mark Mardell
PS. Please subscribe to "Movers and Shakers”, our podcast about Parkinson’s
PARKINSON'S UK GETS OUR SUPPORT
Parkinson's UK operates by raising funds nationally and locally for its activities in funding research for for a cure and its other work.
The local Activity Groups, Branches and support groups are left tor raise their own income to fund the local support group meetings and the various activities organised by them.
We in the network of local groups in Leicestershire and Rutland would ask you to consider supporting the local people living with Parkinson's now by giving to one of them.
We do not forgot the importance of the national work and our groups provide funds to the national organsiation.
For example Leicester East and West have jointly supported the national work by giving a sum, of £5,400 to help fund research.
For further information on what we do and how to support Parkinson's click below
Parkinson's UK Information
Parkinson's UK Advisors
Parkinson's Nurses
Parkinson's UK Membership
Fitness Groups
Keeping physical fit and exercise is proven to be important in the control of the symptoms of Parkinson's. There are a number of groups across the counties which offer the opportunity to engage in regular exercise designed for those with Parkinson's
Click here for details
Volunteer Opportunities
We have some fantastic opportunities to volunteer in our area, volunteering is a great way to get to know people while making a positive difference to people affected by Parkinson's.
We are currently looking for
Lead Volunteer for Loughborough Group
Marketing and Designer
Web and social media person
Legacy Spend Manager
If you are interested in any of the roles please contact us on
contact@leicesterparkinsons.org.uk or debbie.gaskill@parkinsons.org.uk
IF YOU HAVE AN URGENT NEED FOR HELP OR SUPPORT
PLEASE CONTACT THE CONFIDENTIAL NATIONAL HELPLINE ON 0808 800 0303
OR EMAIL hello@parkinsons.org.uk